Tag Archives: medical

Volunteer for the Hong Kong Alliance for Rare Diseases

23 May

A rare disease is any uncommon disease with a very low prevalence rate. There are over 6,000 diseases identified as rare diseases worldwide. Most rare diseases are caused by genetic defects or mutation and are found during childhood or even early infancy. In most of the cases, they pose serious threat to a patient’s entire life with extreme disabilities affecting quality of life. Some of them are even degenerative and life-threatening.

The definition for rare diseases differs among different organisations and jurisdictions, as follows: 6.5 to 10 cases in every 10,000 by World Health Organization (WHO); less than 7 in every 10,000 in the US; less than 5 in every 10,000 in the European Union (EU); and less than 1 in every 10,000 in Taiwan.

Some commonly known rare diseases identified in Hong Kong include Mucopolysaccharidosis, Pompe Disease, Infantile Cutaneous and Articular Syndrome, Tuberous Sclerosis Complex, Myelofibrosis, Marfan Syndrome, Spinocerebellar Ataxia, Muscular Atrophy, Fabry Disease, Gaucher Disease, Achondroplasia, various forms of Osteochondrodysplasias, Inborn Errors of Metabolism and Mitochondrial Diseases. Most of the rare diseases are genetic in nature. In spite of a very few reported cases, rare diseases present a real threat to patients’ health, and bring heavy burden to their families.

Hong Kong has in place a world-renowned public health policy, and a healthcare system of high standard. However, we lag far behind in terms of prevention, diagnosis, treatment and protection of rare disease patients, as compared with many countries and places in Europe, US, and Asia. Government has not come up with a clear definition of rare diseases, or formulated related policies. The general public, including some healthcare professionals and social workers, have inadequate understanding and knowledge about rare diseases.

What Hong Kong Alliance for Rare Diseases does
* Enhance understanding of rare diseases among patients, carers and their families; promote self-help and mutual support and positive attitude, towards leading a more fulfilling life.
* Promote public education on rare diseases, strengthen community awareness, understanding and support for patients, their families and related self-help organisations.
* Ensure rare disease patients and their families’ needs and views are represented via policy advocacy and dialogues with Government authorities; leading to the formulation of proper support policies and services to address their needs in medical care, rehabilitation, education, welfare and social participation.
* Support and assist in rare disease-related research study.
* Unite rare disease patients, families, self-help organisations, healthcare professionals and academia, media and other stakeholders, promote collaboration and exchange.
* Promote dialogues, consultation and collaboration among related rare disease organisations in Hong Kong, Mainland China and overseas.

What you can do to help
The Hong Kong Alliance for Rare Diseases organises various events and activities to promote community awareness and support for rare disease patients and families. They invite you to act now and register as their volunteer.

Please download and fill in the Volunteer Registration Form by following this link, and email to info@hkard.org

UNICEF 2017 Little Artists Big Dreams Drawing Competition

2 Apr


Join China Children’s Week 2017 Little Artists Big Dreams Drawing Competition

Hong Kong Committee for UNICEF (UNICEF HK) will hold the China Children’s Week 2017 – Little Artists Big Dreams Drawing Competition on 7 May 2017 (Sunday) at Central Lawn, Nursery Park, West Kowloon Cultural District, Kowloon. The competition to be held one week before Mother’s Day will raise funds for UNICEF’s ‘Cash Transfers for Deprived Children‘ (CCT) Project in China, which will be dedicated to giving a good start in life for every child by improving the maternal and child health services in China.

© UNICEF/UNI49229/LeMoyne

Although families from remote and deprived areas are now entitled to free hospital delivery and healthcare services, suspension of work and high travelling costs make them reluctant to access these services and lead to high maternal and neonatal mortality rates. Since 2013, UNICEF HK has allocated the funds raised in China Children’s Week to the CCT project launched by UNICEF in 15 counties in Yunnan, Gansu and Sichuan. Through the initiative, women from underprivileged families will receive cash subsidies, enabling their access to prenatal and postnatal checkups, hospital delivery and vaccinations for their babies. By 26 January 2017, a total of 16,806 women and children under 1 year old have been benefitted from this project.

By joining the Little Artists Big Dreams Drawing Competition, children can celebrate an early Mother’s Day. While expressing their love to mothers in the drawings, these little artists can also raise funds for mothers and children in rural China, championing the spirit of ‘kids helping kids’. UNICEF sincerely invites all little artists aged 12 or below to participate in this meaningful fundraising event for CCT Project, ensuring a healthy good start for children.

Date: Sunday, 7 May 2017

Time: 12 – 6pm

Place: Central Lawn, Nursery Park, West Kowloon Cultural District, Kowloon (Carnival will be set up in Sunset Lawn)

Price: $180 donation

To register please go to their website

© UNICEF HK/2016

This competition is open for children who are 12 or under.
There are 3 age groups
Group A: 6 years old or under (Born in 2011 or after)
Group B: 7-9 years old (Born between 2008 and 2010)
Group C: 10-12 years old (Born between 2005 and 2007)
Awards: 1st Prize, 2nd Prize, 3rd Prize and 20 Consolation Prizes for each age group;
Most Popular Award (online voting);
Overall Champion;
All participants will receive a certificate of participation.
The 3 organization with most participants will receive a certificate.

7 April 2017 (Friday) Deadline for submission of printed application form
21 April 2017 (Friday) Deadline for online application
Late April 2017 Confirmation emails to all applications, this email will be used for registration on event day
7 May 2017 (Sunday) China Children’s Week 2017 – Little Artists Big Dreams Drawing Competition
To be announced Official results and prize collection announcements on the website

About UNICEF: UNICEF promotes the rights and well-being of every child, in everything they do. Together with their partners, they work in 190 countries and territories to translate that commitment into practical action, focusing special effort on reaching the most vulnerable and excluded children, to the benefit of all children, everywhere.

UNICEF believes all children have a right to survive, thrive and fulfill their potential – to the benefit of a better world.

UNICEF is a leading humanitarian and development agency working globally for the rights of every child. Child rights begin with safe shelter, nutrition, protection from disaster and conflict and traverse the life cycle: pre-natal care for healthy births, clean water and sanitation, health care and education.

UNICEF has spent nearly 70 years working to improve the lives of children and their families. Working with and for children through adolescence and into adulthood requires a global presence whose goal is to produce results and monitor their effects. UNICEF also lobbies and partners with leaders, thinkers and policy makers to help all children realize their rights—especially the most disadvantaged.

Volunteer with New Life Psychiatric Rehabilitation Association

3 Mar

new-life-logoThe New Life Psychiatric Rehabilitation Association was formed in 1959 by a group of people in recovery of mental illness under the name New Life Mutual Aid Club. The organization was formally registered with the authorities in 1961 and re-organized in 1965 under its current title. The Association was incorporated under the Companies Ordinance Act in 1968. It joined the World Federation for Mental Health in 1969, becoming a member of the Hong Kong Council of Social Service in the same year, and became a member of the Community Chest of Hong Kong in 1970.

New Life strives to promote mental wellness for people in recovery of mental illness and for their families and the general public with the ultimate goal of equal opportunities, social inclusion, acceptance and full participation for all in the community.

New Life is dedicated to pioneering and delivering people-focused, recovery-oriented, and evidence-based community mental health services with care and respect, innovation and continuous drive for excellence and professionalism.

Promoting Recovery and Body & Mind Wellness have always been the core values of our services. By means of a wide variety of community psychiatric rehabilitation services, New Life endeavours to help people in recovery of mental illness lead independent lives, make their employment choices in alignment with their own interests and abilities, obtain employment in the open labour market, participate in social and leisure activities in the community and, ultimately, attain a desirable quality of living so as to live out a life characterized by holistic good health and body-mind equilibrium.

Services include
new-life-4New Life Psychiatric Rehabilitation Association offers Residential Services covering 2 long stay care homes, 11 halfway houses, 2 hostels for moderately mentally handicapped, 4 self-financed hostels and one sub vented supported hostel in addition to residential respite services and support services.

new-life-3New Life Psychiatric Rehabilitation Association operates four sheltered workshops, including New Life Farm and three industrial type sheltered workshops. Sheltered workshops provide people in recovery of mental illness (PIR) and people with disabilities with a working environment specially designed for vocational training through an income-generating work process facilitating the development of potentials and confidence of PIR to prepare them for open employment and community reintegration.

For a complete list of New Life’s services, please visit their website

What you can do to help
People in recovery of mental illness are frequently faced with frustration, confusion, social-stigma as well as self-stigma while they are en route to recovery. Medication side-effects, difficulties in adapting to work, interpersonal relationship and family are just but a few burdens that are laid heavily on their shoulders. Volunteers are their dear supporters, rendering encouragement and loving care that they need in order to overcome the hurdles and regain a life with vitality and dignity.

Volunteers are also the driving force that helps change the general public’s attitude towards mental health issues. Due to either misconception or unawareness, or the combination of both, people in general are reluctant to face mental health problems head-on, often resulting in delayed intervention and stigma being developed towards people in recovery of mental illness. With their enthusiasm and positive attitude, volunteers counter this negative thinking and help advocate community attention to mental health issues. The effects volunteers bring about would surely help people in recovery of mental illness integrate better into the society and develop their potential to the full.

If you are interested in joining with New Life as volunteers, please download and fill out the Volunteer Application Form and send it back to New Life by mail or fax. (Address: 332 Nam Cheong Street, Kowloon, Fax: 2770 9345). New Life will match volunteer work in accordance with your personal interests and preference, making effective use of your time, skills and experience.

Young adults welcome.

Volunteer with PathFinders and help vulnerable children born in Hong Kong

26 Feb

Every child born in Hong Kong deserves a fair start in life. PathFinders ensures that the most vulnerable children born in Hong Kong, and their migrant mothers, are respected and protected.

pathfindersFor PathFinders, the journey began in 2007 when co-founders Kylie Uebergang and Melissa Mowbray-d’Arbela rescued four babies born to migrant women in Hong Kong. Realising a gap in Hong Kong society where women and babies go undocumented and unprotected, PathFinders was founded on the belief that no child should be born alone and deprived of medical support, shelter and identity. Since 2008, PathFinders has served more than 4,000 babies, children and women. A respected charity committed to supporting the welfare of children by providing child protection, mothers’ protection, counselling, shelter, food, access to health, access to education and access to legal support, demand for their services grow from year to year. These numbers are likely to continue growing as more migrant workers enter Hong Kong each year.

One life at a time, PathFinders help mothers make informed decisions about their life. PathFinders are successfully removing their children from risk and are ensuring these children are part of safe and nurturing homes. Here are a few examples showing how PathFinders influences local policies and practices:
– Migrant women who have overstayed their visas as a result of becoming pregnant and losing their employment are no longer turned away from NGOs and government departments because of incomplete documentation.
– Migrant children can now be adopted in Hong Kong through Hong Kong’s Social Welfare Department.
– Migrant children adopted in Hong Kong now have the right of Unconditional Stay, which entitles them to legitimately claim their place in Hong Kong and call it their home.
– The time required for an undocumented migrant child to obtain a Hong Kong birth certificate has been reduced by 75%.
– Hong Kong birth certificates are now certified by the Indonesian Consulate, ensuring that children born to Indonesian mothers in Hong Kong are recognized by the Indonesian government and have access to basic services and education in Indonesia.

pathfinders-logoJoin PathFinders in making a difference. PathFinders is looking for volunteers who are motivated and passionate about helping children and their migrant mothers and here are ways in which you can help.

Playtime with Toddlers
pathfinders-2By assisting PathFinders to run the workshop smoothly, you will help to create a calm learning environment that enables their beneficiaries to get the most out of the class. Your contribution will help their migrant mothers to gain the skills and knowledge that they need to take charge of their lives.

Supplies Distribution
PathFinders have Clothes Collection Day once a month for their beneficiaries to collect some much needed items. PathFinders needs volunteers to help with sorting and distributing supplies and with babysitting. Please help them look after children who are 3 years old and under.

Sunday Outreach Programme
PathFinders is striving to raise public awareness on maternity rights for domestic workers by distributing information packs at different parks on Sundays. Please come and join them.

Education Programme – Life skills educators
PathFinders is looking for individuals who are knowledgeable in topics relevant to their beneficiaries’ daily lives to facilitate their weekly group meetings. They are also open to new topic suggestions! Topics covered include:
– Personal empowerment
– Parenting
– Women’s health
– Legal rights
– Relationships & culture

Access to Healthcare Programme
pathfinders-1Many of PathFinders’ beneficiaries, particularly newborns and mothers in the last stages of pregnancy, are in critical need of medical care but are unable to afford treatment. PathFinders is looking for medical professionals who can provide pro bono, basic medical services for expectant mothers and children. They are especially seeking registered professionals operating in Kowloon.

Meet and Greet with PathFinders Limited
If you would like to learn more about PathFinders’ services, please come and join their volunteers workshop. For more information, please visit their website or register to volunteer by following this link.

Volunteer for Art in Hospital

16 Feb

art-in-hospital-logoArt in Hospital is a community art project that began in April 1994. Registered as a charitable institution its aim is to serve the needy through therapeutic art creation, and promote through art in a caring community and develop hospital art in Hong Kong.

Mission
art-in-hospitalDeliver Holistic Care – Bring art into the hospitals to provide a comforting environment for patients to receive treatment.

Unite Artistic Force – Encourage artists, art students, volunteers and general public to contribute their creativity and artist skills to benefit the community.

art-in-hospital-2Involve Patients as Artists – Involve patients to take an active role in expressing and sharing their feelings to achieve self-healing, and to explore their artistic potentials.

Support the Supporters – Provide professional training of hospital art for volunteers and medical practitioners who can reach out to benefit the community.

Nurture the Society – Raise awareness of hospital art in the community and encourage public participation in hospital art projects.

Explore Opportunities – Utilize possible resources, establish partnerships and seek service opportunities and sponsors to support hospital art.

If you are interested in volunteering, please visit their website to download the registration form.

Note: Volunteers who would like to volunteer in hospitals is required to attend the Infection Prevention Talk according to the Hospital Authority’s requirement.

Orbis Walk for Sight 2017

1 Feb

orbisThe World Health Organization estimates that there are currently some 285,000,000 visually impaired people worldwide. If this figure represented a national population, it would be the fourth most populous country in the world today! In attempting to overcome such a huge challenge, Orbis is continually striving to enhance their sight-saving capabilities.

To keep Orbis’s newly refurbished Flying Eye Hospital flying high and delivering the sight of hope in remote corners of the world, you are warmly invited to join Walk for Sight 2017! In doing so, you will play a small but vitally important part in energizing Orbis’ sight-saving power and enabling them to create a brighter future for every visually impaired citizen of the world’s Nation of the Blind.

The 2017 walkathon will kick off at 9:30am on Sunday March 26 at Tai Tam Country Park. In addition to a choice of family-friendly 6-kms or experienced 10kms walks, Orbis will be making your day away from Hong Kong’s hustle and bustle doubly memorable with a fun-packed post-walk carnival. A range of kids-friendly activities, including game booths, DIY workshops and stage performance will be organized at the Hong Kong International School.

Please put your best feet forward and help their latest Angel with Wings to fly even further in its mission to eliminate the Nation of the Blind!

Date: Sunday, 26 March 2017

Time: 9:30am – 2:30pm

Place: The walk will begin and end at the Hong Kong International School in Tai Tam Country Park

Price:
Individual category – Minimum sponsorship HK$500
Family category – Minimum sponsorship HK$1,200 for 2 adults and 2 children under 12 years old plus HK$500 for each extra adult or child
Team category – 10 members or above; minimum sponsorship HK$450 per member

Route Options: 6km for families & 10 km for keen walkers

Post-walk fun: Enjoy a sandwich box, stage performance and game booths and much more. *A kid certificate will be granted to participants aged under 12 or below and have completed the walk.

Enquiry: 2595 0263

Deadline for application: Thursday, 23 February 2017
To register please visit their website.

About Orbis:
Orbis1ORBIS Hong Kong was established in early 90s when a group of impassioned individuals who shared the dream of a world free from preventable blindness came together to raise public awareness about eye care issues. That same year, three high-profile supporters donated US$14 million to fund the purchase of a DC-10 airplane to replace the existing DC-8 Flying Eye Hospital. The biggest of these supporters was leading local businessman Mr. Y.C. Ho, who generously donated US$7 million of the DC-10’s cost. He and his fellow donors’ extraordinary kindness succeeded in instantly raising awareness about ORBIS’s presence in Hong Kong and its worldwide sight-saving work.

Cycle for Millions

7 Jan

pok-oi-1
Cycle For Millions is the first-ever territory-wide charity cycling event in Hong Kong. Organised by Pok Oi Hospital, this annual event has attracted over 33,000 riders from all walks of life since 2009.

Event Objectives
– To raise funds for Pok Oi Hospital’s development for the largest Nursing and Residential Care Home in Hong Kong
– To promote cycling in the Hong Kong Community
– To advocate green living style
– To prevent illness by encouraging physical exercises
– To help establish a stable and harmonious society
– To raise public awareness over road and cycling safety

pok-oi-2Date: 5 March 2017 (Sunday)

Registration Time: From 7:00 am to 9:45 am (Participants will assemble and start at different time slots as assigned by the Organizer. All participants must complete the charity ride within the specified event time.)

Place:
Bring Own Bike: Mei King Playground, Tsing Yi (Near the Tsing Yi Road)
Borrow Bike: Hong Kong Institute of Vocational Education (Tsing Yi Campus) outdoor parking area

Price:
Individual Category – $680 (minimum funds raised)
Corporate Category (team not exceeding 15 members) – $28,000 (minimum funds raised)

Requirements for Participants
– The Organizer strictly requires all participants to possess basic cycling skills and road safety knowledge.
– All participants must have reached the age of 12 by March 5, 2017
– Participants under 18 years old must obtained a signed provision from their parents or guardians in order to participate in the event. The Parent/Guardian Consent form can be downloaded from the event website.

For more information and to register, please visit their website

About Pok Oi Hospital: Pok Oi Hospital, a charity organization that has grown with the Hong Kong community since 1919, currently operates 84 service units spreading all over Hong Kong serving over 800,000 beneficiary attendances annually. Pok Oi provides quality and diversified services, including hospital, clinical centres for teaching & research in Chinese medicine, Chinese medicine mobile clinics, nursing home, care & attention homes, day care centres for the elderly, secondary and primary schools, kindergartens, family multiple intelligences centres, community cyber centre and hostel for single persons.